+379 New decisions

Hello,

Boy I can't believe it has already been a week since we last talked. Last Friday I went and saw my hip doctor who said I needed a double hip surgery sooner then later. I think it scares me a little about being in a full body cast for weeks. Mommy and daddy still are trying to make a decision if this is best for me, so please keep praying.

Friday night I got to play with Torie (who is on her way home now.. woo hoo!) and see some of my other friends. There were 6 children in the house with Hurlers. Actually 2 of them are in the hospital during transplant but we got to visit with Ethan (who is delayed for his 2nd transplant), Alison ( who is here for tubes in her ears and just had her 400th ERT.. that is her in the picture). And of course Torie and I were there. We had lots of fun!

We left for home on Saturday and got to IL. but then daddy got really sick ( with bronchitis), but the Lord heard all the prayers and he felt like we could continue our trip in the Morning. We finally got home on Sunday night and I was so excited to see my sisters, brother, grandma's and grandpa's. We have stayed very busy with settling back home and trying to help with my great grandma with is going to be with Lord very soon. Not only all that but then the flu started traveling around our house. Hopefully it will be gone soon. James and I haven't gotten it so we try to take care of everyone and so does my big sister Hannah who has been a great help. Our days are full but we know the Lord is in control. Thank you for visiting and check back soon! We love you all!

Josiah

+371 Peacefull Sleep

Hello,

Thank you all for your prayers, I know the Lord is hearing them. After a rough afternoon yesterday I seemed to get a little energy back right before bedtime. Mommy and daddy still made me lay down and go to sleep early but after a few minutes I was glad. I slept peacefully through the night with hardly any snoring or noise. When I woke up this morning I was in a good mood and ready to go. I am still sore and don't bend to well but I am happy to be able to breathe better and have energy. The Lord has been so good, we are all very thankful.

I had an appointment this morning for my back. They said I don't need back surgery (only a 50degree bend and they don't fix it till it gets to 75), and I may never need it if my back keeps growing like it has. Praise the Lord ( very common for children with Hurlers to need many bone surgeries, especially back). The doctors did see in my x-ray that I will need hip surgery and very soon. I have no hip sockets and that is why I walked late and a little funny now. We will know more tomorrow when we see a different Dr.... so many Doctors but I am getting lots of stickers :)

Thank you for checking on me and hopefully after seeing a few more Doctors I will be able to head home on Saturday.

Love to all,
Josiah

update on surgery

After leaving for the hospital at 6am he went into surgery at 9am and out around 3pm. He is doing well but very exhausted and congested. Please continue to pray for the swelling!! We will update more later but wanted to let you know how he is doing. Thank you for your prayers!!

Josiah's mommy and daddy ;)

+369 1 year check up in MN

Hello everyone,

Sorry it has been so long again, time just seems to fly by when you stay busy. Last Friday was my 1 year un-birthday (and Torie's too)! Can't believe it has been a whole year since my BMT.

Mommy, Daddy and I left early in the morning to leave for our big trip. We made it to IL. Friday night and got to visit with my Uncle Josh and Aunt Lindsey. We left out early in the morning again and made it to Minneapolis on Saturday evening. We got to visit with Torie and her grandma's when we got here and had so much fun! We also had a treat to see Liam and his mommy before they left. They are friends that we met when we were here before. Actually we have seen a few familiar faces around here... it always seems like family here in the house that Love built and we are blessed to be able to stay here.

On Sunday we got to visit our church that feels like home and really enjoyed it. Monday we hit the road running. Our first appointment was 8:30am and our last was 4:30pm, with lots in between. We ate pancakes and sausage for dinner and got to sit with Torie (she is doing so well they should get to go home on Friday !!!). Tuesday started even earlier then before and we had to be on the shuttle by 7:40am. We have a very slow day today which is good because we have to be at the hospital at 6:00am on Wednesday. I go under Anesthesia (around 8) for several hours to have many tests done and to have my belly button hernia fixed. I am not looking forward to going to sleep but I really don't like waking up after they have had to stick a tube down my throat. Please pray that it will all go well and everything is fine. Also my blood pressure is a little high. They are going to take it again while I am asleep and if it is still high I will have to go on Medicine. Please pray that it is lower so I don't have to stay on any medicine. The Lord has blessed me so far , I know He is not going to leave me. We just need to trust that He is in control , no matter what! Mommy will give an update after surgery , so please pray and check back tomorrow!

Love to all,

Josiah