Thursday, March 1, 2012

Still updates from mom

Where oh Where has Josiah's smile gone.
Forgive the lack of updates in the last 24 hours. Days are running into each other and sometime we can't tell day from night unless the sun is out. Josiah is still in a lot of pain but the Lord has blessed so very much. The Lord has answered so many prayer and encouraged us so much with family, friends and even strangers. Josiah has had some very caring Doctors, nurses and care takers. Just one exsample is one of the head nurses was trying to contact a medical group that might work with our insurance to get Josiah some kind of wheel chair for home transport. She informed that she will try
to get something before we leave but she has no idea what or when it will arrive. A company took us on and a gentleman brought us a very big treat today. He had heard of Josiah's situation and ordered a special pediatric chair and had it overnighted and put it together this morning to make sure we had it delivered asap. He specifically picked this one out for Josiah because it has so many ways that it will help make him comfortable from laying down flat, to lifting his legs to a comfortable height, to being able to make it through tight spots so we can continue to use it when we get home. We did include a picture for those who would understand such a blessing.
It is so hard to see your child struggle but I know that God has a great purpose in all this even if we don't understand it right now. Even though he is in pain, he has started eating a little and getting his desire to feed himself back. He did receive some visitor last night. Uncle Ben, Grandma Dee and Pa-paw came
to visit. They brought a toy phone that Josiah took to and seemed to be wanting to hold on to it even after they were gone. Josiah was making his sounds like he was calling James or Sara. I think he wants to call them to came bring him home. It was so very kind of them to come visit but Josiah still didn't smile. For those of you who know him well, not much gets this little guy down for very long. He still hasn't smiled and wakes up crying but we know that he won't be down for long. God is working in his little body and we can see small improvement each day (especially when people pray! :). Thank you for your prayers, thoughts and encouragement. It is a blessing in this time of need. May God give us days to be able to pay all this forward one day :).

Love to all,
Josiah's mommy and daddy and family

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