Day +4

Hello again,

Just wanted to say Hi. I did really good last night and got some sleep (so did daddy :). This morning I am not keeping my Oral meds down again. They had to give me my Blood pressure medicine 3x, yuck! My blood pressure seems to go up a little during the day so they give me extra medicine to help that ( but I think anyone who has nurses around trying to give them oral meds when their tummy hurt would have higher blood pressure too:). Over all doing well! We continue to ask the Lord to bless everyday that I would get stronger, my cells would grow and my body would accept it. That is a lot to think about for a little guy! So I just rest and rest. I still love getting down and playing, a little more shaky each day and I only last a few minutes at a time. My platelets are down to 20, they don't give me extra blood till they go down to 10, (hemoglobin at 10). My white blood count is 0. So far so good, I do still have the dots from head to toe (Dr. says its from my platelet count being low),but my Elmo pink is gone. Mommy has noticed my hair falling out a little at a time, but I didn't have much to begin with.

We got a lot of snow today. I wish I could go play in it but the Dr. said, "no sledding for you mister". Bummer, maybe when I get better James and I can go make a snowman! Mommy says that James is a little sore lately but it doesn't seem to get him down to much, just a little more fussy. Glad I don't have to hear that but I do miss playing with him! I love to watch the Video's people have sent to me over the Internet. Like my uncles and Grandma Dee said Hi to me ( http://www.upsidedownsyndrome.blogspot.com/), I watch it over and over clapping and waving bye! I miss everyone so much. You could send me a video, I would love to say Hi to you!! God bless you all and thank you for your continued prayers!